I'm doing pretty great too! My mouth has been feeling better and better and while I still have some burning issues- it's not everyday, it's not all day and its managable. My lips are chapped still but not painful and through this all, I'm kicking my chap-aid addiction as well. I don't know if my progress is because of all the vitamins or just because my "flare up" is over with but I'll take it!
I had my follow-up with my amazing doctor, Dr. Marty last night. She's so wonderful! She was pleased with my progress and thought my lips and mouth looked pretty good. We both agreed that actual consistancy or "integrity" of the lips is different now and it's hard to know if that will be forever or just while my body is still healing.
My blood work for my last lap came back-Vitamin B6. ....hmmmm...the average range is 2-21, with most falling around 10. Mine was a 30. A 30! Dr. Marty admitted that never, ever had she ever seen a B6 that high- low, very common. High- very rare. So rare- she didn't even know what to tell me. Right in front of me she headed to the computer to do some research on a few medical databases. Unfortunately, they didn't have anything about high B6 either. She encouraged me to google it myself and see what the mainstream world had to say about it. She did however think it was nothing to be concerned about yet. She did advice me to go off of the B COmplex suppliment I was taking as I don't need anymore 6. Instead, I'll start a Sublingual ( melts under your tongue) B12-250 mg a day to deal with that fairly low deficiency.
Everything else stays the same- High dose of D, B12, Probiotics, and Fish Oil. Re-do all labs in January.
Hang tight-be aware of my body and changes-let her know of anything that is uncomfortable or unmanagable.
I'm a medical mystery but for now- I'm OK. Here's the sweet conversation I had with Alaric yesterday as I was getting ready to go to the doctor. It made me realize how my health so directly affected he and Mara and how we so easily take our health for granted.
Alaric: Why are you going to the doctor again
Me: for her to check and see if I'm doing better
Alaric: are you doing better?
Me: I think so. I feel better
Alaric: I think so too-you don't cry everyday like you used to
Heartbreaking but true. Thanks so much for all your prayers. I'll keep you updated!
3 comments:
LOVE YOU
So good to hear!
So glad to hear Jack Rollins is doing better! Thank God! I'm so glad you're feeling better too! Thanks for the update!
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